The story of Tucker Ray, a 27-weeker with many diagnoses, and his baby brother, Easton John, a 34 weeker aka big brother's shadow. Here I post about the challenges and joys of working full time, caring for two rambunctious boys with my husband, and leaning on God for wisdom in the midst of the chaos.

Wednesday, February 9, 2011
Two "Snow" Days and a trip to Houston
Tucker was out of school for two days last week due to wintry weather conditions. It was pretty cold, but no snow or sleet, so I'm not completely sure why the schools were shut. On Wednesday night, I got a phone call at 11pm saying that schools were closed the next day. I figured that meant that Gina would be home, too, and wouldn't she love to sleep late? Not going to happen with Tucker going over! ;)
So on Thursday morning, I got him up and ready, and he went over to GiGi's house (he pronouces it "g" like girl, not giraffe), he wakes up in the mornings asking to go to Gee Gee's house, forget Nana, Poppy, or anyone else who lives there! Haha, they aren't the main attraction! He was happy to go over there, but not too happy that Gee Gee was still in bed. He likes riding to bring her to high school every morning, she ended up locking him out of the room because he wouldn't leave her alone. He had a nice quiet day with my mom and sisters, and then on Friday, LSU was closed, so Chris and I were home with Tucker.
On Thursday night Chris, Tucker, Sarah, and I rode over to Amy's house to get the money from the fishing tournament. It was amazing, it was all in a huge envelope. So on Friday morning we went to the bank to deposit it into Tucker's savings account. Then we ran a few errands, and Tucker enjoyed some crackers and licked a hamburger for lunch. He was very well-behaved and enjoyed the day out, then we all took a long nap. It was a nice day off of work and school.
Friday night Tucker went to Sissy and Pops's house, and Chris and I went to Outback with Sarah and Brad. It has been months since we have been able to get out like that, and we had a very nice time. On Saturday and Sunday Chris and I both didn't feel too well, so we mainly stayed at home. It's cold season, it seems that everyone is just getting over being sick or just starting to get sick. I can't seem to kick this cold, and it is wearing me out. Tucker has been doing very well, he is talking a lot, and using a bigger vocabulary.
We were supposed to go to the Mito Walk last Saturday to raise money and awareness for Mitochondrial Disease. Unfortunately, the weather in Houston was bad also, so it got cancelled. We left Monday afternoon for Tucker's Tuesday morning appointment with Dr. K. Tucker was very good for the ride, he watched Kipper on his DVD player and looked out the window for the hotel. He was very excited to be staying in a hotel again, even though it wasn't as nice as Give Kids the World. He laid right between me and Chris and had the biggest grin:)
Dr. K said Tucker looks great, and we don't have to go back for 6 months. That is really good news. Ever since he has been on the mito supplements and we have been watching his sugars and changed his food, his whole body is healthier. He was not too interested in seeing Dr. K or her residents; he was much more interested in her spinning chair and the Metro train that was outside the window.
When we go back in August, we will see Dr K, Dr P (the lung doctor and immunologist who specializes in mito kids) and the autism specialist who specializes in behavior. So it was pretty much a boring appointment, which is of course the best kind.
We got to see Missy, who now works for Dr K, it was so nice to see her and talk to her for a bit. We also saw Ali and Alex for a short time in the waiting room; Alex had a very bad infection over Christmas, and the quick action of the mito doctors and PICU doctors saved his life. He was all smiles, telling me about Pokemon characters I had never heard of, haha.
After the appointment, we rode the train in the park a few times, ate a burger at Smashburger (Chris actually liked a place that I picked for once!), then headed home. Tucker was good for the whole ride, until we got home. We told him we were going home, but he cried so hard for the hotel! The next time he goes to a hotel will be in May (for Jackie & Justin's beach wedding) or maybe in April (for the Mito family get together that we hope to attend), so he will have to wait a while.
I started a new job on January 3, and it is going well. It has been a major life change, and we are all still adjusting to it. January was such a very busy month, and it doesn't seem like anything is slowing down soon, but we are trying to get setteld into a routine. It is so nice to have Chris at home, now that hunting season is over and he does not have the pressure to work overtime every weekend, he is starting to run more errands and do more with Tucker and the housework. We still haven't figured out how to get everything done....the house is a wreck! But Tucker is doing well and hasn't been sick for all of January (knock on wood! I almost hate to type those words, that usually jinxes us.), so we are counting this new job as a blessing and a very positive change.
We will be working on potty training (again) and setting up summer therapy plans over the next few months. Thanks for checking in on us and for all of your prayers.
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