Friday, August 13, 2010

Blood Sugar Issues

Tucker's first day of school went well. Yesterday I picked him up early for an appointment with the Diabetes Educator; the teacher came up to me and told me how well Tucker was doing that day:) He was already used to the routine and he is getting used to the rules. That is great, he is such a big boy! Sometimes I think he changes personalities on the school bus, haha, he turns into Tucker Ray, Model Student, on the way there. Kind of like the transformation that occurs when he stays at his grandparents, he is always "good as gold" and "such a sweetheart" with them! Tucker had high blood sugar three weeks ago in Houston, then last week in BR he had a regular reading. So we were all hoping the one in Houston was a fluke. Yesterday the nurse gave us a meter (we picked a purple one-that's Tucker favorite color....meaning the only one he knows!) with some strips and the whole get-up and taught me how to use it. It is not a hard concept, and she gave us a new model with a very small needle so the stick doesn't even hurt Tucker. The problem is that the needle is so small and delicate that barely any blood comes out:/ We have to "pump" his finger for the blood, and Chris is much better than me at this. Maybe because I am too scared to squeeze his finger as hard as it needs to be squeezed?? Yesterday afternoon his blood sugar was 205, (way too high), then last night before his last feeding it was 83 (perfectly fine), but an hour after his last feeding it was 348 and then 298 (we took it twice because we thought we messed up with that high of a number!). This morning it was 88 before breakfast and then 247 right before he got on the bus (which was also an hour after his first feed). The original plan was to monitor his blood sugar 3 times a day for 4 weeks and then report back. Well the Diabetes nurse called me last night; she said because his sugar was 205 yesterday, the dr wanted us to just monitor it for one day and then they would take immediate action. Thank goodness, because that 348 last night really freaked me out. I called the pedi nurse at 8am, I listed off all of the numbers, and she is supposed to call me today. They will likely change his formula to a diabetic formula. I actually blend up his food once a week and feed it to him in his g-button at home (he gets fruits, veggies, soy milk, grains, fats, and meats), and he has really put on weight since we started this (in a good way!). He gets Pediasure twice a day at school, the blended food has to be refrigerated and it's thick, so we thought Pediasure would just be easier at school. But I guess now he will have to just do the diabetes formula?? We will see. Ugh, this is so overwhelming right now. I know in the grand scheme of things pricking your kid's finger is NOT a big deal, we've been through much worse! But today I had to prick him about 8 times, and use 8 meter strips (which are supposedly ridiculously expensive) to get a reading. Tucker is going to start hating that little purple meter! And of course with sugar readings that high, this is definitely an issue we should be monitoring and acting on. Unregulated sugars can cause horrible damage to the body's cells, and obviously Tucker needs his cells as healthy as possible. ----------------------------------------------------------------------------------------------- In other news, Tucker has been hilarious lately! He uses his words so appropriately, and really surprises us! He is starting to use 4-word and sometimes even 5-word sentences, which if you know him, means that he can boss all of us around even better than before! For example, he used to just scream "tent! tent!", well now he says "get in the tent." He loves opening and closing things, for the longest time "open" was the only sign he knew. Well now he says "open box peez" (please) or "put it in poos" (meaning put something in my purse). Sometime last week I had a particularly hard day and I laid down with him that night to cuddle before bed. I hugged him and he looked at me, pushed me and said "get out my bed." I was surprised and kind of proud of him, and of course I obeyed. The other day he called my brother "Unca Dylan" instead of just Dylan, it was so cute. I made a Naked Neck Video for Tucker's Naked Neck party a few weeks ago, it is about 7 minutes long, and it's pretty good if I do say so myself! So I ordered DVDs of it for us, my parents, and Chris's parents. Well this video has replaced Mickey and Barney as Must See TV in our house, at least once a day Tucker climbs on my lap and demands "baby moobie." I ask him who is the baby? He tells me "tucker" even though I don't think he really understands that's him. Tucker also still LOVES my blue purse. He sleeps with it most nights instead of a stuffed animal. On our last trip to Houston, we stayed in a hotel (according to Chris, a seedy hotel, I am NOT allowed to book our trips anymore) and Tucker had a hard time falling asleep. We were exhausted, so after about 30 minutes of fighting I said "you've got your pillow, you've got your purse, now GO TO SLEEP!" Chris asked me "are you serious? did you really just say that?" And the worst right now....well for me at least....Tucker just loves when Chris plays his PS3 video games:/ Chris walks in from work, and Tucker brings him the controller and says "game". Of course Chris has to take a shower and eat first, but Tucker does not like that arrangement! Chris keeps the games out of Tucker's reach, but Tucker points up to them and says "open game." As I often say about hunting, and now with the PS3, I am so outnumbered in this house!! I don't think Tucker's vote should actually "count" yet, he is just a little kid, but Chris insists that it does. The bad side to this (for Chris) is that Tucker has now realized that when he presses the eject button, the PS3 game comes out and Daddy has to stop playing. So he now controls when Chris starts playing, and when his gaming time is up! Oh, what are we creating here?? A spoiled little monster! No wonder why he behaves so much better at school:)

1 comment:

  1. Wow. I can imagine how that high blood sugar count scared you. Ms Joanne has had counts in the 700's before. Maybe changing his formula will fix this. I pray it is that simple. Of course he is an angel at school. That's normal...it's great! And I understand spoiled...as I am balancing a dog on my left shoulder as I type with mt right hand only. The things we do for love.

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