Insurance Issues

So the SS office finally called me today. We had applied for SSI disability since Tucker was born at such a low weight. He is "disabled," so he will get $30 a month in the hospital. He will also get Medicaid, so that's good. It will save us money on all the bills! I wonder if it will cover his bills once he comes home. I'm sure those will add up just as quickly as the ones from in the hospital. They told me that if Medicaid pays less than 50% of Tucker's medical bills, then Tucker could get a higher SSI benefit. He is supposed to have BCross, so then Medicaid would pay barely any of his bills. However, BCross has not officially "accepted" Tucker yet-I sent his application, but they never got the fax-then I went in and brought a handwritten application on June 30. So last week we got a bill for backdated premiums since May 26, Tucker's b-day. I sent in the check, they deposited it, but Tucker still has not been officially "accepted" by BC according to the hospital. I know that he is, though, b/c they deposited my check. Point being, Tucker can not get his benefit increased until the SS office knows that we have private insurance paying his bills. Once I get that proof, then I have to track down my case worker at SS to show her I'm not lying about Tucker's medical coverage. I feel hopeful, though, b/c until today I had given up on the SSI benefits altogether. Now I know there is a chance. Any money or help Tucker can get will make me that much closer to staying home full-time with him. I wonder if there are any programs for Tucker's long term care-since he'll be on the vent for so long. I used to take care of teenage quints who had long term problems. I was paid by the state through a social service coordinator. i wonder if Tucker would qualify for that type of help. I have read from other blogs that many of you have therapists and nurses come into your home-I guess in the next few months, I will learn all about that, too.