The story of Tucker Ray, a 27-weeker with many diagnoses, and his baby brother, Easton John, a 34 weeker aka big brother's shadow. Here I post about the challenges and joys of working full time, caring for two rambunctious boys with my husband, and leaning on God for wisdom in the midst of the chaos.

Tuesday, August 15, 2006
Trach Update
So Tucker's doctor called today to say that it is very likely that he will get a trach in a few weeks. He is at 38 weeks 4 days gestation, and they usually put in a trach at 42-44 weeks.
He just started steroids, and they don't like them to be on steroids for a trach surgery. So they might cut his steroids short-don't know yet. So we are looking at mid-September for the trach surgery, then about two months for him to get used to it and get ready to come home-so about a five month long NICU stay once it's all said and done.
I feel pretty positive at this point, I guess b/c I've known for about a week that Tucker was a long way from home. That's really the hardest part. My husband is totally freaked about the trach, and about us caring for Tucker on all that equipment at home. I just want Tucker home so badly, but Chris says "we want him safe, too" I know that. The doctor said Tucker may be on a small vent for about two years. This just blows my mind-I don't know of anyone who has had this-so please, if you are in this situation, I need some support:)
I know that we'll have help from the pulmonologist and home health care. I am not worried about learning the equipment-I have become very accustomed to the medical terminology and tests-they don't intimidate me anymore. What I AM worried about is how I am supposed to take care of Tucker and still pay the bills. My husband and I really wanted Tucker-we knew there would be sacrifices, but I never planned on staying home with him. I'm not being selfish-I'm being realistic-I can't afford to stay home, especially not for two years. . Any advice?
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