Tuesday, August 15, 2006

Trach Update

So Tucker's doctor called today to say that it is very likely that he will get a trach in a few weeks. He is at 38 weeks 4 days gestation, and they usually put in a trach at 42-44 weeks. He just started steroids, and they don't like them to be on steroids for a trach surgery. So they might cut his steroids short-don't know yet. So we are looking at mid-September for the trach surgery, then about two months for him to get used to it and get ready to come home-so about a five month long NICU stay once it's all said and done. I feel pretty positive at this point, I guess b/c I've known for about a week that Tucker was a long way from home. That's really the hardest part. My husband is totally freaked about the trach, and about us caring for Tucker on all that equipment at home. I just want Tucker home so badly, but Chris says "we want him safe, too" I know that. The doctor said Tucker may be on a small vent for about two years. This just blows my mind-I don't know of anyone who has had this-so please, if you are in this situation, I need some support:) I know that we'll have help from the pulmonologist and home health care. I am not worried about learning the equipment-I have become very accustomed to the medical terminology and tests-they don't intimidate me anymore. What I AM worried about is how I am supposed to take care of Tucker and still pay the bills. My husband and I really wanted Tucker-we knew there would be sacrifices, but I never planned on staying home with him. I'm not being selfish-I'm being realistic-I can't afford to stay home, especially not for two years. . Any advice?

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