Fever

Tucker has a fever Yesterday, he ran a temp of 99-100 degrees all day-not really high, but he slept all day. He never does that. I spent the day rocking him while he slept. They tested him for just about everything (including CBC, blood cultures, tracheal aspirate, urine culture, RSV wash), and the tests came back that he has some infection, but not a specific one. His trach site looks AWFUL! It is read and very swollen all around his stoma, so we think that is the cause of infection. He is on antibiotics, so he had to get an IV in his arm That didn't bother him nearly as much as the urine catheter-he won't look at his nurse Lindsey the same anymore Since he was so calm, his blood gas looked great and they weaned his rate to 35! His oxygen requirement was only 26%, and he was satting over 95% all day. How sad! He has to be sick to breathe better. He is moving to a new room-that's exciting, we'll be able to really decorate it and stay longer b/c it has a door and everything. I feel like such a nerd being so excited about Tucker's new room, but it will feel more like "home." The sad part is that Tucker's only getting that room since he's been there so long (5 1/2 months). There's only one other baby that is older than him at the hospital. About Tucker's insurance: His lifetime max is $5 million. He is at about $1 million right now, but not all of the bills have come in. His nurse recommended that we just take him off of private insurance and let Medicaid pick up the bills until he gets the trach out (4-5 years), so that he does not hit the lifetime max. And so that we wouldn't have to pay the individual premiums-she said we should save that money for other expenses we'll have for Tucker which will definitely add up-any thoughts?